Join the Newborn Screening (NBS) Connect Patient Registry at nbsconnect.org
The NBS Connect Patient Registry is a support network for parents, guardians and individuals with inherited metabolic disorders. Participants have access to low protein recipes, educational materials, interactive health tracking systems, professional support, research opportunities, discussion forums and more!
The registry was launched with NBS-PKU Connect for Phenylketonuria and recently added NBS-MSUD Connect for Maple Syrup Urine Disease. Extensive development will continue to include other disorders.
Visit nbsconnect.org to register!